
In this week’s podcast episode, we continue Emilee’s story as she shares what life looked like after Oakley’s diagnosis and their transition home from the NICU. Emilee opens up about navigating the unknowns of Oakley’s rare genetic deletion, making decisions about medical interventions like a G-tube and hearing devices, and adjusting to life at home with a medically complex baby. She also reflects on the learning curve of advocating for her son, finding confidence in her voice as a mom, and t...