
Send us Fan Mail A routine string of toddler troubles—ear infections, poor sleep, constipation—hid a rare diagnosis that would change everything. When Lydia tested positive for Sanfilippo syndrome (MPS III), her mom, Morgan, refused to accept “go home and love her” as the final word. You’ll hear how a nurse-mom turned her grief into a plan, translating complex genetics into a clear mission: fund access to gene therapy before regression begins around age four, when speech and skills start to f...