128. Navigating Your Child’s Rare Disease with Nikki McIntosh

In this episode of Burnt Pancakes: Momversations, I had the honor of talking with Nikki McIntosh, author of Rare Mamas: Empowering Strategies for Navigating Your Child’s Rare Disease and the incredible woman behind the Rare Mamas community. Nikki’s story begins when her youngest son, Miles, was diagnosed with spinal muscular atrophy and everything in her world shifted. She left her 18-year marketing career and stepped fully into caregiving, advocacy, and creating a place for other rare moms t...